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The objective of this study was to analyze the level of knowledge of parents or guardians about the biological newborn screening test. An integrative literature review study was conducted using the secondary databases Virtual Health Library, Latin American and Caribbean Health Sciences Literature, Scientific Electronic Library Online and Online System for Search and Analysis of Medical Literature based on the specific descriptors retrieved in the Health Sciences Descriptors. In general, it was identified that parents or guardians have limited knowledge about biological newborn screening, restricting themselves to some diseases, resulting in delays or risk of not performing the exam, also causing risks to the child’s health. Efforts are needed from health professionals so that, throughout the prenatal period, pregnant women and family members are exposed to up-to-date and evidence-based information about the test, both in clinical consultations and in systematic health education actions in collective groups and also in the waiting room and other spaces of the unit and territory.
Referências
BRAZIL. Ministry of Health. Biological neonatal screening: technical manual. Brasília: Ministry of Health; 2016.
BOMFIM, V.V.B.S.; ARAÚJO, P.C. Treptow LM, Sousa EO, Sousa-Júnior CP, Cabral DFB, et al. Neonatal screening for severe combined immunodeficiency syndrome. Research, Society and Development. v.11, n.11, p.1-12, 2022.
CARVALHO, B.M et al. Early access to biological neonatal screening: articulation between actions of child care programs. Rev latinoam enferm. v.28, n.1, p.e3266, 2020.
DÖNDÜ, S.G et al. Health literacy and knowledge of antenatal care among pregnant women. Health Soc Care Community. v.29, n.6, p.1815-1823, 2021.
GOMES, A.P.S et al. Knowledge about neonatal screening: discourses of mothers and fathers of newborns. REVISE. v.8, n.3, p.255-263, 2019.
PERÍGOLO, L.B.T et al. The expansion of the heel prick test in Brazil and its implications for neonatal screening, detection of rare diseases and congenital abnormalities. Electronic Journal Medical Collection. v.16, n.1, p.1-6, 2022.
PEDROSA, J.I.S. The National Policy of Popular Education in Health in debate: (re)cognizing knowledge and struggles for the production of Collective Health. Interface (Botucatu). v.25, n.1, p.e200190, 2021.
MIRANDA, K.S. et al. Barriers experienced by nurses in performing the heel prick test: an integrative review. RAS. v.18, n.1, p.237-46, 2020.
VASCONCELOS, M.N et al. Perception of mothers of children submitted to the Guthrie Test in Basic Health Units. Rev APS. v.8363, n.2, p.311-320, 2021.
SILVA, A.B et al. Educational actions as an intervention strategy in pregnant women’s attitudes towards breastfeeding. Sick Focus. v.12, n.5, p.880-886, 2021.
BRAZILIAN SOCIETY OF PEDIATRICS. Extended heel prick test should be offered in the SUS. São Paulo: SBP; 2019. Available at: https://www.sbp.com.br/imprensa/detalhe/nid/teste-do-pezinho-ampliado-deve-ser-oferecido-no-sus-afirma-presidente-de-dc/
TAKEMOTO, A.Y. et al. REPENF – Guthrie Test: knowledge of puerperal women. Rev. Paraná. Enferm. v.3, n.1, p.30-37, 2020.
Gomes APS, Sousa AR, Passos NCR, Santana TS, Rosário CR. Knowledge about neonatal screening: discourses of mothers and fathers of newborns. REVISA [Internet]. 2019 [accessed on 2021 April 17]; 8(3): 255-63.
Arduini GAO, Balarin MAS, Silva-Grecco RL, Mequi ABT. Knowledge of the puerperal women about the heel prick test. Rev Paul Pediatr. [Internet]. 2017 [accessed on 2022 Feb. 18]; 35(2): 151-157.
Mendes CA, Guigen AP, Anastácio-Pessan FL, Dutka JCR, Lamônica DAC. Parents’ knowledge about neonatal screening, contribution of the website Portal do Bebés – Guthrie Test. Rev CEFAC [Internet]. 2017 [accessed on 2022 Feb. 18]; 19(4):475-483.
Miranda KS, Santos IC, Almeida Neto OP, Calegari T. Barriers experienced by nurses in performing the heel prick test: an integrative review. RAS [internet]. 2020 [accessed on 2021 April 10]; 18: 237-246.
Silva MPC, Contim D, Ferreira LA, Marqui ABT. Guthrie test: perception of pregnant women in prenatal guidance. Rev Bras Saúde Mater Infant [Internet]. 2017 [accessed on 2021 Mar. 28]; 17(2): 299-305.
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Copyright (c) 2024 Rafael Dias Cordeiro, Fernanda Santos Landim, Viviane Ferreira Lima, Maria Luisa Cardoso Oliveira, Fernanda Moreira Fagundes Veloso